When I was a baby, my leg started to twitch uncontrollably and that was out of the norm for me or anyone else. My mom took me to a doctor and they looked me over and they said “Oh she’s fine”. My mom got the papers back from the appointment. When my mom read the papers, it said I had Cerebral Palsy. My mom was upset that they didn’t tell her to her face. From there, she started looking for hospitals for special needs that I could go to. She found Shriner’s Children’s Hospital. I started going there so they could help me with my Cerebral Palsy. Each Cerebral Palsy diagnosis is different. Mine is very different from other peoples because some other people can still walk and have control over their legs and I wasn’t able to have control over my legs' I have very little control over my legs and it makes very hard for me to walk without support and where I go, it takes a lot of my arms. It makes it very hard for your hands to grip things. I was put in a stroller until 2nd grade then the school gave me a wheelchair until I was able to get my own. When I was 6 years old, we went up to my hospital and they said she needs more support and I was started to fall over to one side and fall forward as well. The doctor and my parents decided to see if I was able to fit or control a wheelchair. We met with the people that work with the hospital to make all the wheelchairs that kids use or need. We needed to fit a seat to my body and find a frame that would work. As I have grown, I have gone through 1 other wheelchair and it was my first wheelchair. The company discontinued my wheelchair because there was so many problems with it so I had to switch to my current wheelchair. I prefer this wheelchair better because in my old wheelchair, the tilt controls were on the back of the chair; on this one, they are right next to my “joystick”. It was very hard for me to get used to this wheelchair because the controls were different, the steering was different, and the speed was different too. I have very limited independence at home due to my wheelchair and how bad my legs are. I cannot lift myself or reach any high spots and that has caused me to be very frustrated sometimes.
We hope you enjoyed this story.
Bye for now from Kaelie and Levi
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